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To improve the lives of Children/Young People with Cerebral Palsy by offering a high quality, standardised programme of regular physical and radiological examination, enabling early detection and treatment of secondary musculoskeletal conditions and facilitating multidisciplinary management.
How does the Cerebral Palsy Integrated Pathway Work?
When you/your child are diagnosed with cerebral palsy you will be referred in to the Cerebral Palsy Integrated Pathway.
From age 2, you/your child will be seen by specially trained paediatric physiotherapists who will ask questions about your condition and care. They will then perform a physical assessment which currently focusses on the spine, hips and legs.
Children with cerebral palsy have a risk of their hip joints gradually moving out of place. This is hard to pick up so, in addition to the examination, a hip x-ray may be needed. This depends on how old you/your child is and how severely you/your child is affected by cerebral palsy.
Following you/your child's CPIP assessment, the information will be entered on to a specially designed computer system. Only specialists involved in you/your child's care will be able to access your personal information. It will also be instantly available so for example, if you/your child needs to see their orthopaedic surgeon (s)he will be able to access their CPIP assessment and enter information about future plans of care (e.g. surgery).
You/your child's anonymised information may be used for ethically approved research. One of our goals is to follow in the footsteps of our Swedish colleagues (who's CPUP system is the basis for our CPIP one) and their more than 80 peer reviewed scientific publications! The Cerebral Palsy Integrated Pathway not only attempts to make your/your child's life better, but also the lives of children in the future.
What happens during a physiotherapy assessment?
The video below was created by What? Why? Children in Hospital. They are a Scottish charitable organisation who have made over 60 extremely helpful and high quality videos and information leaflets encompassing many aspects of the hospital experience for children and their carers. Please have a look at there website here.